Bills › 89th General Assembly
Relating to the newborn screening
Sponsored by the House Human Resources (companion To Sf 2345 By Committee on Human Resources) Committee
Topics:Health care
Same legislation: SF 2345
Where it is now
- Done: IntroducedFebruary 21, 2022
- Skipped: SubcommitteeSkipped
- Done: House committeeMarch 10, 2022
- Done: Passes the HouseMarch 10, 202292–0
- Skipped: Senate committeeSkipped
- Done: Passes the SenateMarch 8, 202247–0
- Done: To the GovernorApril 21, 2022
- Done: Signed into lawApril 21, 2022
SF 2345 became law → The same legislation passed as SF 2345, so this version was set aside. Go to SF 2345 What’s a funnel?
What’s in it
This bill relates to newborn screenings. The bill establishes, in Code, the congenital and inherited disorders advisory committee (advisory committee), which currently is established in administrative rules. The bill provides, as is provided in administrative rules, that the advisory committee is established to assist the center for congenital and inherited disorders (center) and the department of public health (DPH) in matters relating to genetic and genomic health care services for all Iowans, that the members of the advisory committee shall be appointed by the director of public health, that the members shall include persons with relevant expertise and interest including parent representatives, and that one of the duties of the advisory committee is to assist the center and DPH in designating the conditions to be included in the newborn screening and in regularly evaluating the effectiveness and appropriateness of the newborn screening.
Read the full explanation
The bill specifically requires that beginning July 1, 2022, the advisory committee shall ensure that all conditions included in the federal recommended uniform screening panel as of January 1, 2022, are included in the newborn screening. The bill requires that within months of the addition of a new condition to the federal recommended uniform screening panel, the advisory committee shall consider and make a recommendation to DPH regarding inclusion of the new condition in the newborn screening, including current newborn screening capacity to screen for the new condition and the resources necessary to screen for the new condition going forward. If the advisory committee recommends inclusion of a new condition, DPH shall ensure that the new condition is included in the newborn screening within months of receipt of the recommendation. The bill requires DPH to submit an annual status report to the general assembly by December 31, regarding the current conditions included in the newborn screening, any new conditions currently under consideration or recommended by the advisory committee for inclusion in the newborn screening, any new conditions considered but not recommended by the advisory committee in the prior 12-month period and the reason for not recommending any such conditions, any departmental request for additional newborn screening program capacity or resources necessitated by the inclusion of a recommended new condition in the newborn screening, and any delay and the reason for the delay by the advisory committee or DPH in complying with the specified time frames for considering and recommending or adding a new condition to the newborn screening. The bill requires the state hygienic laboratory to establish the newborn screening fee schedule in a manner sufficient to support the newborn screening system of care. The bill also changes references to “newborn metabolic screening” or “metabolic newborn screening” to “newborn screening”.
From the explanation printed with the bill as introduced, written by the Legislative Services Agency. Amendments adopted later aren’t reflected. Full bill text
Fiscal note
Cost: up to $714,000 Compare with other bills
1 million. Operating costs to continue administering the three additional tests are estimated to be approximately $714,000 per year. 80.
- Final Fiscal Note — Newborn Screening · June 30, 2022
- Newborn Screening · March 8, 2022
- Newborn Screening · March 7, 2022
Nonpartisan cost estimates from the Legislative Services Agency’s Fiscal Services Division. The newest is first. Reading a fiscal note
Iowa Code it changes
Creates§136A.3A
Read from the bill as introduced. Each links to every bill touching that chapter of the Iowa Code. How the Code works
Lobbying
11 for · 0 against · 10 undecided · Who →
Family tree
Where this legislation came from and where it went: earlier tries, the versions it moved through this Assembly, and later bills built on it.
89th General Assembly
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