HF 2539: Relating to the newborn screening

What it does

This bill relates to newborn screenings. The bill establishes, in Code, the congenital and inherited disorders advisory committee (advisory committee), which currently is established in administrative rules. The bill provides, as is provided in administrative rules, that the advisory committee is established to assist the center for congenital and inherited disorders (center) and the department of public health (DPH) in matters relating to genetic and genomic health care services for all Iowans, that the members of the advisory committee shall be appointed by the director of public health, that the members shall include persons with relevant expertise and interest including parent representatives, and that one of the duties of the advisory committee is to assist the center and DPH in designating the conditions to be included in the newborn screening and in regularly evaluating the effectiveness and appropriateness of the newborn screening.

Lobbying · 11 for, 0 against

For: Every Life Foundation for Rare Diseases; EveryStep; Genentech, Inc., A Member of the Roche Group; Iowa Biotechnology Association; Iowa Chapter of the National Association of Pediatric Nurse Practitioners; Iowa Nurse Practitioners Society; Pfizer Inc. c/o Politicom Law LLP; Sanofi US; The Family Leader; The Family Leader Foundation; Vertex Pharmaceuticals Incorporated

In plain words

1. February 28, 2022Filed in the House
2. March 8, 2022Cost estimate (fiscal note) posted
3. March 10, 2022Withdrawn