Relating to newborn metabolic screening to include all disorders listed on the recommended uniform screening panel recommended by the United States department of health and human services

Where it is now

1. ✓
   Done: IntroducedJanuary 16, 2019
2. ✓
   Done: SubcommitteeJanuary 17, 2019
3. ✓
   Done: Senate committeeMarch 11, 2019
4. –
   Skipped: Passes the SenateContinued as SF 564
5. Next: House committee
6. Next: Passes the House
7. Next: To the Governor
8. Next: Signed into law

Became SF 564 → Its progress continues under the new number. Go to SF 564 What’s a funnel?

What’s in it

This bill directs the department of public health to adopt rules to include in the newborn metabolic screening, at a minimum, all core conditions listed on the recommended uniform screening panel (RUSP) recommended by the secretary of the United States department of health and human services advisory committee on heritable disorders in newborns and children (SACHDNC). The bill also directs the department specifically, not later than January 1, 2020, to expand the newborn metabolic screening panel to include Mucopolysaccharidosis type 1, Glycogen storage disease type II (Pompe), X-linked Adrenoleukodystrophy, and any other lysosomal storage disorder listed on the RUSP as of July 1, 2019.

Full bill text¹

Senate subcommittee

Named January 30, 2019. It hasn’t reported yet.

• Sen. Mark Segebart R
• Sen. Craig Johnson REmail
• Sen. Amanda Ragan D

Three legislators hear a bill first and recommend what the committee should do; it’s the best time to weigh in. How to take part

Family tree

Earlier and later bills are matched by wording or an identical title.

Similar bills

• HF 339 Relating to the expansion of the newborn metabolic screening panel
  89th General Assembly · In committee
  Very similar
• HF 2121 Relating to the expansion of the newborn metabolic screening panel
  88th General Assembly · In committee
  Very similar

Matched by wording or an identical title.