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Amendments › HF 933

Amendment H-1160 to HF 933

Relating to pediatric palliative care centers, and including effective date provisions

Adopted · March 25, 2025

Filed March 24, 2025 in the House by

What it changes

AI summary This amendment adds specific definitions for pediatric palliative care patients, centers, and medical equipment suppliers. It requires these centers to employ a medical director and contract with a hospice program, while also expanding the list of who can provide certain medical items to the patient or their family.1

Read the amendment’s wording
  1. Page 1, by striking lines 7 through 21 and inserting: “Sec. ___. Section 135J.1, Code 2025, is amended by adding the following new subsections: NEW SUBSECTION . 2A. “DMEPOS” means the same as defined in 42 C.F.R. §424.57(a). NEW SUBSECTION . 2B. “DMEPOS supplier” means the same as defined in 42 C.F.R. §424.57(a). NEW SUBSECTION . 8A. a. “Pediatric palliative care center” means a residential care facility as defined in section 135C.1, that only serves pediatric palliative care patients and that only provides respite care services as defined in section 135C.1, and hospice program services. b. Notwithstanding section 135C.1, subsection 21, a pediatric palliative care center may provide care and services to individuals who require the services of a registered or licensed practical nurse on a nonemergency basis, and may provide accommodation, board, personal assistance, and other essential daily living activities to fewer than three individuals at any one time. NEW SUBSECTION . 8B. “Pediatric palliative care patient” means an individual described by all of the following: a. The individual is under twenty-one years of age. b. The individual has been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten the individual’s life expectancy. c. The individual is not expected to survive past twenty-one years of age.”
  2. By striking page 1, line 35, through page 2, line
  4. Page 2, line 22, by striking “hospice” and inserting “pediatric palliative care”
  5. Page 2, line 25, after “a” by inserting “pediatric palliative care”
  6. Page 2, line 26, after “center, the” by inserting “pediatric palliative care”
  7. Page 2, line 27, after “the” by inserting “pediatric palliative care”
  8. Page 2, line 32, after “a” by inserting “pediatric palliative care”
  9. Page 2, after line 33 by inserting: “
  10. A pediatric palliative care center shall employ a medical director.
  11. A pediatric palliative care center shall contract with a hospice program to assist in the provision of core services to pediatric palliative care patients.”
  12. Page 2, line 34, by striking “
  13. ” and inserting “
  14. ”
  15. Page 2, line 35, by striking “patient to visit the” and inserting “pediatric palliative care patient to visit the pediatric palliative care”
  16. Page 3, line 1, after “the” by inserting “pediatric palliative care”
  17. Page 3, line 2, by striking “patient while the” and inserting “pediatric palliative care patient while the pediatric palliative care”
  18. Page 3, line 4, by striking “
  19. ” and inserting “
  20. ”
  21. Page 3, line 5, after “a” by inserting “pediatric palliative care”
  22. Page 3, line 5, after “the” by inserting “pediatric palliative care”
  23. Page 3, line 7, by striking “medications.” and inserting “medications, provided that, consistent with the pediatric palliative care patient’s interdisciplinary team’s plan of care for the pediatric palliative care patient and the pediatric palliative care patient’s family, the items are provided by any of the following:”
  24. Page 3, after line 7 by inserting: “a. The pediatric palliative care patient. b. The pediatric palliative care patient’s family. c. A hospice program contracted with the pediatric palliative care center to provide such items. d. A DMEPOS supplier.”
  25. Page 3, line 8, by striking “
  26. ” and inserting “
  27. ”
  28. Page 3, line 8, after “by a” by inserting “pediatric palliative care”
  29. Page 3, line 9, after “the” by inserting “pediatric palliative care”
  30. Page 3, line 12, after “the” by inserting “pediatric palliative care”
  31. Page 3, line 13, after “to the” by inserting “pediatric palliative care”
  32. Page 3, by striking line 14 and inserting “pediatric palliative care patient’s departure, or properly disposed of upon the pediatric palliative care patient’s death.”
  33. Page 3, line 15, by striking “
  34. ” and inserting “
  35. ”
  36. By renumbering as necessary.

Official amendment (PDF) · In the Bill Book